Here you will find are resources and videos for all patients and families.
Those Applying to Sainthood – Caregivers!
Michael Petty, PhD, RN, APRN, ACNS-BC, CCNS
Advanced Practice Nurse Leader University of Minnesota Medical Center
The success of any transplant or MCS recipient depends to a significant degree on the family caregivers who accompany the patients on their journey. As a medical team we recognize the importance of family caregivers in our work with heart failure patients. The goal of this session will be to focus on the family caregiver:
• Identify challenges commonly described by caregivers
• Discuss self-care strategies that might serve the caregiver
• Share experiences, difficulties, solutions, and successes of caregivers in attendance
An Introduction to Cardiac Catheterization for Heart Transplant Patients
Dr. Alan Berger, MD University of Minnesota Dept. of Cardiology
Presentation by cardiologist, Dr Alan Berger MD of the University of Minnesota September 9, 2020. Dr Berger gave an overview of catheterization lab procedures for the heart community. (background noises by Maggie the dog :-)
Sleep Health
Snigdha Pusalavidyasagar MD FAASM Associate Professor of Medicine Division of Pulmonary, Critical Care & Sleep Medicine University of Minnesota Medical School
Proper sleep is vital for recovery and long-term healing. It can become a challenge whether one is an LVAD recipient or long-time transplant recipient. These areas will be discussed to understand the background and treatments.
Finding Joy in the midst of Chaos
Kelly Newlin, RN, BSN
Professional Nurse Coach
Donation and Transplant Professional
Did you ever feel that once you got your "second chance" at life, it didn't feel much like that at all? You have been given more "time", which has turned into more doctors, appointments, illness, and stress. The "wait" is finally over and you should feel grateful, but you don't. In this session, we will discuss the impact our physical health has on our emotional wellbeing and ways to find JOY in the midst of chaos.
Transplant Update and Patient Community Input
Tamas Alexy, MD, PhD, FACC, FHFSA
Heart Failure and Transplantation Cardiology University of Minnesota
OPTN/UNOS Region 7 Representative
And
Glen Kelley
OPTN/UNOS Heart Transplantation Committee Patient Representative
This session will review the latest trends and what steps are being taken to improve equity in heart transplant allocation. We will also share how individuals can provide direct feedback regarding changes to the transplant listing system that is currently under development. Whether you are a past transplant recipient, waiting for a heart or have an LVAD, there will be relevant topics for you.
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